NAMI’S
MULTICULTURAL ACTION CENTER
As
part of its mission NAMI is pledged to improving access to treatment and
the quality of care for all Americans with mental illness and their
families. Thus NAMI has created a Multicultural Action Project at its
national headquarters in Arlington, Virginia. The Center’s strategies
include the following:
-
More centrally involved members of
disadvantaged communities in these efforts.
-
Develop and disseminate culturally
competent direct service support models in the field.
-
Decrease stigma through public
education models that address specific racial and cultural barriers.
-
Improve mental health policy
development at the local, state, and national level by increasing
grassroots participation.
INCREASING INVOLVEMENT OF RACIAL & ETHNIC MINORITIES
By
forming coalitions with grassroots groups that serve diverse
communities, and developing cross-cultural alliances that address mental
illness, the Project is building a multicultural grassroots network that
improves understanding of mental illness among members of diverse
communities and increasingly represents all people who are affected by
mental illness.
CULTURAL COMPETENCY
NAMI’s
Multicultural Action Center will be equipped to provide the latest
research and thinking on such issues as: over-diagnosis of disorders
based on race, the overlay of poverty on different racial and ethnic
communities, history of state repression and its impact on accessing
care, cultural prohibitions against seeking help, etc.
PUBLIC EDUCATION
Misinformation and overwhelming stigma continue to surround mental
illness. To address this, public education messages are often developed
to reach a broad audience, bypassing specific cultural and material
realities that racial and ethnic minorities may face. Through
partnerships with organizations that directly serve racial and ethnic
minorities, NAMI’s Multicultural Action Center is drawing on
community-based expertise to create public education messages that
address varied and complex barriers to treatment and care.
POLICY DEVELOPMENT
NAMI’s
Multicultural Action Center will work with the alliances it creates at
the local level to create opportunities for grassroots policy
initiatives.
Working strategically on four key front, NAMI’s Multicultural Action
Center is working to transform practices in the field while
strengthening advocacy efforts across the nation.
CULTURAL DIVERSITY
(From the
Surgeon General’s Report for Mental Health)
OVERVIEW OF CULTURAL DIVERSITY & MENTAL HEALTH SERVICES
Racial and
ethnic minority groups are generally considered to be under-served by the
mental health service system. A constellation of barriers deters ethnic and
racial minority group members from seeking treatment, and if individual
members of groups succeed in accessing services, their treatment may be
inappropriate to meet their needs.
Research
documents that many members of minority groups fear, or feel ill at ease
with, the mental health system. These groups experience it as the product
of white, European culture, shaped by research primarily on white, European
populations.
Research
and clinical practices have propelled advocates and mental health
professionals to press for “linguistically and culturally competent
services” to improve utilization and effectiveness of treatment for
different cultures.
INTRODUCTION TO CULTURAL DIVERSITY & DEMOGRAPHICS
Racial and
ethnic populations differ from one another and from the larger society with
respect to culture. The term “culture” is used loosely to denote a common
heritage and set of beliefs, norms, and values.
The
historical experiences of ethnic and minority groups in the Unites States
are reflected in differences in economic, social, and political status. The
most measurable difference relates to income. Many racial and ethnic
minority groups have limited financial resources. In 1994, families from
these groups were at least three times as likely as white families to have
incomes placing them below the federally established poverty line.
Cultural
identity imparts distinct patterns of belief and practices that have
implications for the willingness to seek, and the ability to respond to
mental health services. These include coping styles and ties to family and
community, discussed below.
COPING
STYLES
Cultural
differences can be reflected in differences in preferred styles of coping
with day-to-day problems. Consistent with a cultural emphasis on
restraint. Asian American groups encourage a tendency not to dwell on
morbid or upsetting thought. They have little willingness to behave in a
fashion that might disrupt social harmony. Their emphasis on willpower is
similar to the tendency documented among African Americans to minimize the
significance of stress, and, relatedly, to try to prevail in the face of
adversity through increased striving.
Culturally
rooted traditions of religious beliefs and practices carry important
consequences for willingness to seek mental health services. African
Americans and a number of ethnic groups, when faced with personal
difficulties, have been shown to seek guidance from religious figures.
Many
people of all racial and ethnic backgrounds believe that religion and
spirituality favorably impact upon their lives and that well-being, good
health, and religious commitment or faith are integrally intertwined.
Cultural
also imprints mental health by influencing whether and how individuals
experience discomfort associated with mental illness. When conveyed by
tradition and sanctioned by cultural norms, characteristic modes of
expressing suffering are sometimes called “idioms of distress”. Idioms of
distress often reflect values and themes found in the societies in which
they originate.
One of the
most common idioms of distress is somatization, the expression of mental
distress in terms of physical suffering. Somatiazation is prevalent among
person from a number of ethnic minority backgrounds. Epidemiological
studies have confirmed that there are relatively high rates of somatization
among African Americans.
Among
culture-bound syndromes found among some Latino psychiatric patients is
ataque de nevious, a syndrome of “uncontrollable shouting, crying,
trembling, and aggressions” typically triggered by a stressful event
involving family. A Japanese culture-bound syndrome, Taijin kyofusho, is an
intense fear that one’s body or bodily functions give offense to others.
Culture-bound syndromes sometimes reflect comprehensive systems of belief,
typically emphasizing a need for balance between opposing forces or the
power of supernatural forces. Belief in indigenous disorders and adherence
to culturally rooted coping practices are more common among older adults and
among persons who are less acculturated.
FAMILY
& COMMUNITY AS RESOURCES
Ties to
family and community, especially strong in African, Latino, Asian and Native
American communities, are forged by cultural tradition and by the current
and historical need to assist arriving immigrants, to provide a sanctuary
against discrimination practiced by the larger society, and to provide a
sense of belonging and affirming a central help-culture or ethnic identity.
Family solidarity has been invoked to explain relatively low rates among
minority groups of placing older people in nursing homes. Families play an
important role in providing support to individuals with mental health
problems. A strong sense of family loyalty means that, despite feelings of
stigma and shame, families are an early and important source of assistance
in efforts to cope, and that minority families may expect to continue to be
involved in the treatment of a mentally ill member. Investigators have
demonstrated an association between family warmth and a reduced likelihood
of relapse.
EPIDEMIOLOGY & UTILIZATION OF SERVICES
One of the
best ways to identify whether a minority group has problems accessing mental
health services is to examine their utilization of services in relation to
their need of services. Some minority groups are underrepresented in the
outpatient treatment population while, at the same time, over-represented in
the inpatient population.
AFRICAN
AMERICANS
The
prevalence of mental disorders is estimated to be the highest among African
Americans than among whites. This difference does not appear to be due to
intrinsic differences between the races; rather, it appears to be due to
socioeconomic differences. When socioeconomic factors are taken into
account, the prevalence difference disappears. It is the lower
socioeconomic status of African Americans that places them at a higher risk
for mental disorders.
African
Americans are underrepresented in some outpatient treatment populations, but
over-represented in public inpatient psychiatric care in relation to
whites. Their under-representation in outpatient treatment varies according
to setting, type of provider, and source of payment. The racial gap between
African American and whites I utilization is smallest, if not nonexistent,
in community-based programs and in its treatment financed by public sources,
especially Medicaid. The under-representation is largest in privately
financed care, especially individual outpatient practice, paid for either by
free-for-service arrangements, or managed care. As a result,
under-representation in the outpatient setting occurs more among working and
middle class African Americans, who are privately insured, than among the
poor. This suggests that socioeconomic standing alone cannot explain the
problems of under-utilization. African Americans are over-represented in
inpatient psychiatric care. Their rate of utilization of psychiatric
inpatient care is about double that of whites. Over-representation
is found in hospitals of all types except private psychiatric hospitals.
While difficult to explain definitively, the problem of over-representation
in psychiatric hospitals appears to be rooted in poverty, disinclination to
seek help, and lack of health and mental health services deemed appropriate,
and responsive, as well as community support, are major contributors to
delays by African Americans in seeking treatment until symptoms become so
severe that they warrant inpatient care.
Finally,
African Americans are more likely than whites to use the emergency room for
mental health problems. Their over-reliance on emergency care for mental
health problems is an extension of their over-reliance on emergency care for
other health problems. The practice of using the emergency room for routine
care is generally attributed to a lack of health care providers in the
community willing to offer routine treatment to people willing to offer
routine treatment to people without insurance.
ASIAN
AMERICANS / PACIFIC ISLANDERS
Asian
Americans are distinguished by extremely low levels at which specialty
treatment is sought for mental health problems. Asian Americans have proven
less likely than whites, African Americans, and Hispanic Americans to seek
care. One national sample revealed that Asian Americans were only a quarter
as likely as whites, and half as likely as African Americans and Hispanic
American, to have sought outpatient treatment. Asian Americans / Pacific
Islanders are less likely than whites to be psychiatric inpatients. The
reason for the under-utilization of services include the stigma and loss of
face over the mental health problem, limited English proficiency among some
Asian immigrants, different cultural explanations for the problems, and the
inability to find culturally competent services.
HISPANIC AMERICANS
Several
epidemiological studies revealed few differences between Hispanic Americans
and whites in lifetime rates of mental illness. Although rates of mental
illness may be similar to whites in general, the prevalence of particular
mental health problems, the manifestation of symptoms, and help-seeking
behaviors within Hispanic subgroups need attention and further research.
For instance, the prevalence of depressive symptomatology is higher in
Hispanic women (46%) than men (almost 20%); yet, the known risk factors do
not totally explain the gender difference.
Several
studies indicate that Puerto Rican and Mexican American women with
depressive symptomatology are underrepresented in mental health services and
over-represented in general services.
NATIVE
AMERICANS
The
indications are that depression is a significant problem in many American
Indian / Alaska Native communities. Alcohol abuse and dependency appear
also to be especially problematic, occurring at perhaps twice the rate of
occurrence found in any other population group. Relatedly, suicide occurs
at alarmingly high levels. Among Native American veterans, post-traumatic
stress disorder has been identified as especially prevalent in relation to
whites. Native Americans are over-represented in psychiatric inpatient care
in relation to whites, with the exception of private psychiatric hospitals.
BARRIERS TO THE RECEIPT OF TREATMENT
The
under-representation in outpatient treatment of racial and ethnic minority
groups appears to be the result of cultural differences as well as financial
organizational and diagnostic factors. The service system has not been
designed to respond to the cultural and linguistic needs presented by many
racial and ethnic minorities.
Among
adults, the evidence is considerable that persons from minority backgrounds
are less likely than whites to seek outpatient treatment in the specialty
mental health sector. This is not the case for emergency department care,
from which African Americans are more likely than whites to seek care for
mental health problems. Language, like economic and accessibility
differences, can play an important role in why people from other cultures do
not seek treatment.
MISTRUST
By
comparison with whites, African Americans are more likely to give the
following reasons for not seeking professional help in the face of
depression: lack of time, fear of hospitalization, and fear of treatment.
Mistrust among African Americans may stem their experiences of segregation,
racism, and discrimination. African Americans have experienced racist
slights in their contacts with the mental health system. Some of these
concerns are justified on the basis of research revealing clinician bias in
over-diagnosis of schizophrenia and under-diagnosis of depression among
African Americans.
Lack of
trust is likely to operate among other minority groups, according to
research about their attitudes towards government-operated institutions
rather than towards mental health treatment per se. This is particularly
pronounced for immigrant families with relatives who may be undocumented,
and hence they are less likely to trust authorities for fear of being
reported and having the family member deported.
People
from El Salvador and Argentina who have experienced imprisonment or watched
the government murder family members and engage in other atrocities may have
an especially strong mistrust of any governmental authority. Within the
Asian community, previous refugee experiences of groups such as Vietnamese,
Indo-Chinese, and Cambodian immigrants parallel those experienced by
Salvadoran and Argentine immigrants. They too, experienced imprisonment,
death of family members or friends, physical abuse, and assault, as well as
new stresses upon arriving in the United States. American Indians’ past
experience in this country also imparted lack of trust of government. Those
living on Indian reservations are particularly fearful of sharing any
information with white clinicians employed by the government. As with
African Americans, the historical relationship of forced control,
segregation, racism, and discrimination has affected their ability to trust
a white majority population.
STIGMA
Both
African American and other ethnic groups, report that embarrassment hinders
seeking treatment. African Americans tend to deny he threat of mental
illness and strive to overcome mental health problems through self-reliance
and determination. Stigma, denial, and self-reliance are likely the
explanation why other minority groups do not seek treatment. Cultural
factors tend to encourage the use of family traditional healers, and
informal sources of care rather than treatment-seeking behavior.
COST
Cost is
yet another factor discouraging utilization of mental health services.
Minority persons are less likely to have private health insurance, but this
factor alone may have little bearing on access. Public sources of insurance
and publicly supported treatment programs fill some of the gap. Even among
working class and middle-class African Americans who have private health
insurance, there is under-representation of African Americans in outpatient
treatment. Much research remains to be performed on the relative importance
of cost, cultural, and organizational barriers, and poverty and income
limitations across the spectrum of racial and ethnic and minority groups.
CLINICAL BIAS
Advocates
and experts alike have asserted that bias in clinician judgment is one of
the reasons for over-utilization of independent treatment by African
Americans. The strongest evidence of clinical bias is apparent for African
Americans with schizophrenia and depression. Several studies found that
African Americans were more likely than whites to be diagnosed with
schizophrenia, yet less likely to be diagnosed with depression. In addition
to problems of over-diagnosis or misdiagnosis, there may well be a problem
of under-diagnosis among minority groups, such as Asian Americans, who are
seen as “problem-free”.
IMPROVING TREATMENT FOR MINORITY GROUPS
Under-utilization of treatment, less help-seeking behavior, inappropriate
diagnosis, and other problems have beset racial and ethnic minority groups
with respect to mental health treatment. This kind of evidence has fueled
the widespread perception of mental health treatment as being uninviting,
inappropriate, or not as effective for minority groups as for whites.
ETHNOPSYCHOPHARMACOLOGY
There is
mounting awareness that ethnic and cultural influences can alter an
individual’s responses to medication (pharmacotherapies). Pharmacotherapies
given by mouth usually enter the circulation after absorption from the
stomach. From the circulation they are distributed throughout the body
(including the brain for psychoactive drugs) and then metabolized, usually
in the liver, before they are cleared and eliminated from the body. The
rate of metabolism affects the amount of the drug in the circulation. A
slow rate of metabolism leaves more drug in the circulation. A fast rate of
metabolism, on the other hand, laves less drug in the circulation. Too
little drug in the circulation reduces effectiveness. There is a wide
racial and ethnic variation in drug-metabolizing, due to genetic variations
in drug-metabolizing enzymes (which are responsible for breaking down drugs
in the liver). For example, 33 percent of African Americans and 37 percent
of Asians are slow metabolizers of several antipsychotic medications and
antidepressants. This awareness should lead to more cautious prescribing
practices, which usually entail starting patients at lower doses in the
beginning of treatment. Unfortunately, just the opposite typically had been
the case with African America patients and antipsychotic drugs. Clinicians
in psychiatric emergency services prescribed more oral doses and more
injections of antipsychotic medications to African American patients. The
combination of slow metabolism and over-medication of antipsychotic drugs in
African Americans can yield very uncomfortable extrapyramidal side effects.
These are the kinds of experiences that likely contribute to mistrust of
mental health services reported among African Americans. Psychosocial
factors also can play an important role in ethnic variation. Compliance
with dosing may be hindered by communication difficulties; side effects can
be misinterpreted or carry different connotation; some groups may be more
responsive to placebo and reliance on psychoactive traditional and
alternative healing methods (such as medicinal plants and herbs) may result
in interactions with prescribed pharmacotherapies. Greater awareness of
ethnopsychopharmacology is expected to improve treatment effectiveness for
racial and ethnic minorities.